tag:blogger.com,1999:blog-9171090972977660670.comments2023-11-15T22:27:37.086-08:002Q37 Deletion Syndrome2Q37 Deletion Syndromehttp://www.blogger.com/profile/01969460486161557769noreply@blogger.comBlogger113125tag:blogger.com,1999:blog-9171090972977660670.post-22193155477048062722023-11-15T22:27:37.086-08:002023-11-15T22:27:37.086-08:00I would hope that if I heard someone saying an off...I would hope that if I heard someone saying an offensive word that could hurt someone that I would ask them not to use that word. I don't care if they are drunk or not. When people are out in public they have freedom of speech but they need to be considerate of others around them. This goes for the "r" word, racial slurs, cuss words, etc. and need to not use words like these. I would think that would just common sense but unfortunately this isn't always the case.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9171090972977660670.post-36670011023655145642018-05-12T04:19:24.033-07:002018-05-12T04:19:24.033-07:00My son has 2q37 deletion has well. Its very hard ...My son has 2q37 deletion has well. Its very hard cant find any supports in our area. Anonymoushttps://www.blogger.com/profile/00420748191488774012noreply@blogger.comtag:blogger.com,1999:blog-9171090972977660670.post-71802928227956653412017-07-31T20:33:39.337-07:002017-07-31T20:33:39.337-07:00I totally get it Jenna! Every time is like the fir...I totally get it Jenna! Every time is like the first time all over again & the fear is always just as bad as the first! �� We just have to know Gods got this & somehow we always manage to remain calm. We love you & Taylor<br />Love your 2q family from Tennessee ��Anonymoushttps://www.blogger.com/profile/00561165507416769722noreply@blogger.comtag:blogger.com,1999:blog-9171090972977660670.post-90023548507447117282017-05-31T15:47:58.115-07:002017-05-31T15:47:58.115-07:00We've been through the so many ups and downs w...We've been through the so many ups and downs with our daughter keira and she'd so many tears a can't even begin to count. She's 7 now and was this past month we were told that she has 2Q37 syndrome. She struggled from the time of birth with sleep apnea and had many a sleepless nite watching her. They finally revel her tonsils and adenoids a couple of years ago and her sleep improved so much. She is severely delayed and there is no greater heartache than sitting in a room full of professionals telling you that she will never live a life that doesn't require some sort of assistance. Academically she will not achieve much that all we can hope for is to provide her with the best quality of life we can. It's a struggle and I can relate to what you are going through. <br />So it's more tests and more specialists to see what the best course if action is for our little angel. I hope and pray that God gives me the strength. <br />I'm not typically one who shares my story with anyone, but what compelled me to do so in this case is that after seeing the pictures of your daughter after my wife sent me this link. I was like wow. My daughter and yours could pass for twins. I wish I knew how to attach a picture to this post. <br />God bless you and your little angel. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9171090972977660670.post-18100606446532156302017-03-07T16:56:32.620-08:002017-03-07T16:56:32.620-08:00Thank you love!!! And yes she will love being a bi...Thank you love!!! And yes she will love being a big sister!2Q37 Deletion Syndromehttps://www.blogger.com/profile/01969460486161557769noreply@blogger.comtag:blogger.com,1999:blog-9171090972977660670.post-68950938034795193532017-03-07T08:48:59.148-08:002017-03-07T08:48:59.148-08:00Jenna - you are a brilliant woman, amazing wife, a...Jenna - you are a brilliant woman, amazing wife, and spectacular mother. Best of all, you obviously have God's all-encompassing trust. He sent you one of his most special spirits because He knew you would rise to the challenge. <br /><br />You now know that are so much stronger and wiser than you would have given yourself credit for!! <br /><br />And should you choose to have another child, the challenges will surely also be different. But you will still conquer them!! Don't base this decision on fear. Base it on LOVE, of which you have untold measure to give. (Besides, I'm sure Taylor would be an amazing Big Sister!) Mom's da Bomb!https://www.blogger.com/profile/09585528922338944057noreply@blogger.comtag:blogger.com,1999:blog-9171090972977660670.post-29452895834576541592017-03-07T08:48:18.141-08:002017-03-07T08:48:18.141-08:00Jenna - you are a brilliant woman, amazing wife, a...Jenna - you are a brilliant woman, amazing wife, and spectacular mother. Best of all, you obviously have God's all-encompassing trust. He sent you one of his most special spirits because He knew you would rise to the challenge. <br /><br />You now know that are so much stronger and wiser than you would have given yourself credit for!! <br /><br />And should you choose to have another child, the challenges will surely also be different. But you will still conquer them!! Don't base this decision on fear. Base it on LOVE, of which you have untold measure to give. (Besides, I'm sure Taylor would be an amazing Big Sister!) Mom's da Bomb!https://www.blogger.com/profile/09585528922338944057noreply@blogger.comtag:blogger.com,1999:blog-9171090972977660670.post-1713458866018096952017-03-07T08:14:32.654-08:002017-03-07T08:14:32.654-08:00Thank you for reading! I hope my blog helps others...Thank you for reading! I hope my blog helps others!2Q37 Deletion Syndromehttps://www.blogger.com/profile/01969460486161557769noreply@blogger.comtag:blogger.com,1999:blog-9171090972977660670.post-25374503186935287312017-03-07T07:47:27.144-08:002017-03-07T07:47:27.144-08:00Thank you for sharing so much of yourself. Your fa...Thank you for sharing so much of yourself. Your family is very amazing and loved!Unknownhttps://www.blogger.com/profile/10198538759686766028noreply@blogger.comtag:blogger.com,1999:blog-9171090972977660670.post-40115229985394833172016-05-07T16:15:19.697-07:002016-05-07T16:15:19.697-07:00My grandaughter has just been diagnosed with 2q37 ...My grandaughter has just been diagnosed with 2q37 deletion syndrome, something I had suspected from a very young age as she possessed very similar characteristics to my son (her uncle) who has Aspergus. Having a child with any disability just enables you to love to a greater degree. Yes God chose that plan for you coz he knew you were the perfect person to be Taylor's mum. Love and blessings to you. Fellow CarerAnonymoushttps://www.blogger.com/profile/15515433001084222975noreply@blogger.comtag:blogger.com,1999:blog-9171090972977660670.post-18512333182456852262016-03-22T08:31:45.407-07:002016-03-22T08:31:45.407-07:00Such a beauty! Prayed for her happiness and health...Such a beauty! Prayed for her happiness and health / daveswedenAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9171090972977660670.post-85749891103937804012015-08-27T08:02:34.559-07:002015-08-27T08:02:34.559-07:00This is "SO" beautiful:-) I don't th...This is "SO" beautiful:-) I don't think I could get through writing something like this about my Lexi but I want to:-) someday>>god bless you both!<br /><br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9171090972977660670.post-43425445380615763782015-08-27T06:40:24.056-07:002015-08-27T06:40:24.056-07:00Thank you!!!! We appreciate it!Thank you!!!! We appreciate it!2Q37 Deletion Syndromehttps://www.blogger.com/profile/01969460486161557769noreply@blogger.comtag:blogger.com,1999:blog-9171090972977660670.post-90411012245282373662015-08-26T21:28:32.097-07:002015-08-26T21:28:32.097-07:00I just love this, such an inspiration for all. Tha...I just love this, such an inspiration for all. That inspiration is Taylor for others with her condition showing her strong will to continue and overcome all her hurdles and YOU for the inspiration you give all mothers! Stay strong my friend ,<br />much love to your family, keeping you in our prayers.marandanoreply@blogger.comtag:blogger.com,1999:blog-9171090972977660670.post-60977018509344333482015-08-02T20:09:03.822-07:002015-08-02T20:09:03.822-07:00So glad to see you still posting! I'm sure yo...So glad to see you still posting! I'm sure you don't remember me, but we met a few years ago at the zoo, my Down Syndrome son followed your friendly little girl around and you and I bonded over the joys and difficulties of special needs parenting. I was just looking back through old posts and thought I'd see how you were doing. Taylor is such a doll. Best wishes to you and yours on this crazy journey we call life.<br /><br />Flo MontierthF Montierthhttps://www.blogger.com/profile/16265289004979225470noreply@blogger.comtag:blogger.com,1999:blog-9171090972977660670.post-35048487204991094622014-04-14T17:44:13.289-07:002014-04-14T17:44:13.289-07:00Contact me at camelgal94@live.com. My autistic gra...Contact me at camelgal94@live.com. My autistic grandson was diagnosed with 2q37 a month ago and now they found out his mother, my dtr, also has it.Anonymoushttps://www.blogger.com/profile/06688176925631523144noreply@blogger.comtag:blogger.com,1999:blog-9171090972977660670.post-8726352487509403012014-02-25T12:08:40.441-08:002014-02-25T12:08:40.441-08:00You're amazing Jenna! I hope I'm as great ...You're amazing Jenna! I hope I'm as great as a mother as you are<3 -RosaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9171090972977660670.post-37250476326324204292014-02-20T06:45:58.957-08:002014-02-20T06:45:58.957-08:00Thank you! I hope this helps in your everyday lif...Thank you! I hope this helps in your everyday life :)2Q37 Deletion Syndromehttps://www.blogger.com/profile/01969460486161557769noreply@blogger.comtag:blogger.com,1999:blog-9171090972977660670.post-7687177745780160332014-02-20T06:44:42.331-08:002014-02-20T06:44:42.331-08:00What a wonderful little girl, came across her vide...What a wonderful little girl, came across her video on youtube and it made my heart melt. What a blessing she must be. / dave from swedenAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9171090972977660670.post-11845713353752737902014-01-02T16:21:55.978-08:002014-01-02T16:21:55.978-08:00My son has faced these same issues. It has been a ...My son has faced these same issues. It has been a constant uphill battle for us as well. We have finally got the exact name for it today, 2Q37 deletion. .....your writing, what you're feeling, made me cry because I too feel tge same way that you feel!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9171090972977660670.post-37284911100699325122014-01-01T22:09:45.219-08:002014-01-01T22:09:45.219-08:00Hey Jenna, it's Flo, the gal you met at the zo...Hey Jenna, it's Flo, the gal you met at the zoo. I enjoyed looking through your blog and have to tell you the video on this post had me smiling and crying. Your right, definitely 2 angels and I wonder what our angels would tell us once we are on the other side of this life and their imperfect bodies are replaced by perfection. I'm betting we'll be more amazed than we are now by our children. So glad I met you. Feel free to check out our family blog at montierthfamily.blogspot.com. I do write a little about Down Syndrome but mostly about life and family. It all comes down to those moments - moments where we connect, like the one I had with you, a total stranger at the zoo! Best wishes on your journey, keep in touch!F Montierthhttps://www.blogger.com/profile/16265289004979225470noreply@blogger.comtag:blogger.com,1999:blog-9171090972977660670.post-16680036387601843282013-10-01T13:57:27.636-07:002013-10-01T13:57:27.636-07:00What a beautiful person you are. My heart and mind...What a beautiful person you are. My heart and mind with u alwaysDamaris_211https://www.blogger.com/profile/03675865846375009042noreply@blogger.comtag:blogger.com,1999:blog-9171090972977660670.post-65073805561858279922013-09-12T09:05:39.408-07:002013-09-12T09:05:39.408-07:00I love this Jenna! -RosaI love this Jenna! -RosaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9171090972977660670.post-50534588250366881642013-02-01T11:38:56.313-08:002013-02-01T11:38:56.313-08:00My best friends daughter has this amongst other th...My best friends daughter has this amongst other things. She is 14 months and still cannot hold her head up. She had a cardiac arrest a couple of months ago due to aspirating, is tube fed because of reflux, had open heart surgery FYI fix a huge hole and lots of other issues you've mentioned. She is such a sweetheart and it is so heartbreaking to watch her and my friend suffer through everything and I'm amazed by their courage and strength. Good luck to you and your beautiful little girlAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9171090972977660670.post-8364913435417150252013-01-29T05:12:50.643-08:002013-01-29T05:12:50.643-08:00I had missed this post... In any case I hope you d...I had missed this post... In any case I hope you do well with putting a team together. I'll be writing a check to donate since I can't attend.<br /><br />I've shared your link on FB.<br /><br />Take care!Romance, She Wrotehttps://www.blogger.com/profile/08381914507188434880noreply@blogger.com