So after the doctor gave us the okay to feed Taylor twelve spoons of Stage 2 baby food twice daily we went by the store and bought baby food right away. It was surreal weird, and crazy, all rolled into one. I usually avoided the baby food aisle or even looking at bibs for that matter. So as I walked through the store I seriously wanted to break down and cry from joy. Instead, I became an overjoyed lunatic looking at all the jars of baby food analyzing them carefully, I’m sure I must have looked half crazy to onlookers.
Given that that particular day had ranked as one of the happiest days of our lives Taylor and I waited patiently until Max got home and as we sat as a family at the table to eat dinner so did Taylor as she too ate her baby food. It was so exciting! I know it sounds strange, but when your child gets pneumonia from her aspirating her own saliva, her being able to eat baby food was a major milestone. To me seeing Taylor eat that day was the equivalent of seeing her walk down the aisle, but she may never get that chance. That moment was so special in our lives that it was as if nothing else mattered and at that time, nothing else did. All I knew was my baby girl was eating like a big girl!
So we began to feed Taylor sweet potatoes and she continued doing well. Max had the camera prepared and we took tons of pictures. And I continued to keep my eye on Taylor like a hawk to make sure she had swallowed the baby food down the tube and was still breathing. And as you can imagine as excited as I was that she was eating, I was also a hot mess unsure if Taylor would choke. And of course she didn’t, she actually enjoyed eating every bit of her baby food.
Since that eventful day few weeks back Taylor has being doing extremely well with her eating. She absolutely loves it and now the possibility of her at least eating the frosting off her birthday cake is coming to life!
When I started this blog I promised myself to be honest as I wanted others to see our struggles and our triumphs, and to keep me honest I cried a lot over all the ‘what ifs’, as I had doubts, yes, I did I had many doubts. But the reality is that miracles can happen and prayers are answered. See one day I was bawling my eyes out next to a hospital bed crying over the fact that Taylor may never swallow and then months later I’m ordering a special birthday cake made of only frosting, ha, ha.
Thank you Maria Piork for helping edit. Please be sure to follow her at Marialovestowrite.blogspot.com.
Yeah! Good for her and for you and your husband!! I am so happy for yall :) The things most parents take for granted can bring so much joy to parents with children who have disabilities. Everyday my daughter amazes me with something new she has learned and we always make a big deal over it. They have so many obstacles to overcome that is doesn't matter what it is it will be special to us.
ReplyDeleteShe is absolutely adorable! Thanks for sharing with us :)
Thanks April! Ya! We do love every little thing she does!!!! :)
DeleteI can feel the joy through your story, congratulations! It reminds me of Gee when she was an infant, she had difficulties feeding with milk bottles, we have to stay up all night feeding her. She took 20ml-30ml each time, using over an hour. Just when we finished one meal, the other one was about to start, it was like a never-ending story. The situations went much better when she started baby food at 6 months old, she liked it, and she is still a greedy little girl until now! Every little progress means so much to us and also the girls! So don't hesitate to cherish, we have much more chances to celebrate than other families indeed :)
ReplyDeleteThank you so much, I love reading your story and see those lovely photos of Taylor, she is so adorable, and always smiling.
Gee just started her first two steps yesterday, she tried her 3-4 steps today, we just cherished for a while!
Yayyyyyy GEE!!! That is sooooo exciting! And yes, we are blessed because now we do not take those things forgranted like most. Taylor wants to eat everything! lol not sure if she is a chunky girl or just teething hahaha
DeleteWe've been through the so many ups and downs with our daughter keira and she'd so many tears a can't even begin to count. She's 7 now and was this past month we were told that she has 2Q37 syndrome. She struggled from the time of birth with sleep apnea and had many a sleepless nite watching her. They finally revel her tonsils and adenoids a couple of years ago and her sleep improved so much. She is severely delayed and there is no greater heartache than sitting in a room full of professionals telling you that she will never live a life that doesn't require some sort of assistance. Academically she will not achieve much that all we can hope for is to provide her with the best quality of life we can. It's a struggle and I can relate to what you are going through.
ReplyDeleteSo it's more tests and more specialists to see what the best course if action is for our little angel. I hope and pray that God gives me the strength.
I'm not typically one who shares my story with anyone, but what compelled me to do so in this case is that after seeing the pictures of your daughter after my wife sent me this link. I was like wow. My daughter and yours could pass for twins. I wish I knew how to attach a picture to this post.
God bless you and your little angel.