Monday, March 6, 2017

Genetic Testing - Part 1

I have often been asked, "Would you have another baby?" To be honest, my initial response was, "HELL NO!!" I was scared - actually more like terrified. I felt like I would give more attention to one child and not enough to the other. Plus, "what if" we had another baby with 2Q37 Deletion Syndrome? All of these are possibilities, but would they be the reason we just stopped with Taylor?


For those who know me, I do not stop because I am afraid. It's pushes me more than anything. Well, as Taylor has grown, I have watched her and her yearning to play with other kids (mom and dad just ain't cutting it anymore). I'm saddened for her that she only gets the every other week with her half siblings. Even then, the age gap is far beyond it to be a constant fun and entertainment for them both. So, now the hard part - genetic testing!

There was no way I was going to knowingly have another child with the same deletion as Taylor. So, I called my primary to consult on getting genetic testing done for Max and I to see if we were carriers. Of course they looked at the name of her syndrome and ran the other way! Then, I saw my OBGYN who just did not feel comfortable with ordering the right test (like... a future child's life was on the line) so, she referred me to another doctor who then, referred me to more advanced genetic doctors (all while charging us their outrageous consult fees). I got to the point where I would not even have Max come because it was just the same thing over and over and no answers. I was devastated, mentally exhausted and quickly brought to a reality check.


I heard in church that our trials are to teach us and not there for us to feel sorry for ourselves. After the meltdown I had a few days prior after leaving my eighth doctor appointment that went no where, it was exactly what I needed to hear! What was I to learn from all of these doctor appointments? Why was I not getting the answer I so desperately wanted? At that point, it was not even about whether the results were good or bad but, just to get the right test to at least have an answer.

I decided I was to learn. I learned that my husband was absolutely amazing and supportive even though, I subconsciously was terrified he would not be on board. I learned a new compassion for those who can't have children naturally and the heart ache they feel. I learned that Taylor was absolutely amazing yet again! That if God only granted me one child, at least he granted me one. I decided to count my blessings instead!


My heart goes out to those mothers and fathers who are so desperately trying or desiring for a baby. And I am sorry for your pain because I know the frustration, the tears, the unknown factors and the costs you are enduring time and time again. The abandonment you feel and the, "Why is it so easy for everyone else but, can't be for me?" You are loved and will forever hold a dear place in my heart and I hope you too will find a way to count your blessings.

**Tune in for part 2 in upcoming weeks! And shout out to Jessica Gould for editing! Be sure to check out her book, "Shallow Foundations" on Amazon at https://www.amazon.com/Shallow-Foundations-Jessica-Gould/dp/1500450642/ref=sr_1_2?ie=UTF8&qid=1488852139&sr=8-2&keywords=jessica+gould

5 comments:

  1. Thank you for sharing so much of yourself. Your family is very amazing and loved!

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  2. Jenna - you are a brilliant woman, amazing wife, and spectacular mother. Best of all, you obviously have God's all-encompassing trust. He sent you one of his most special spirits because He knew you would rise to the challenge.

    You now know that are so much stronger and wiser than you would have given yourself credit for!!

    And should you choose to have another child, the challenges will surely also be different. But you will still conquer them!! Don't base this decision on fear. Base it on LOVE, of which you have untold measure to give. (Besides, I'm sure Taylor would be an amazing Big Sister!)

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    Replies
    1. Thank you love!!! And yes she will love being a big sister!

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  3. Jenna - you are a brilliant woman, amazing wife, and spectacular mother. Best of all, you obviously have God's all-encompassing trust. He sent you one of his most special spirits because He knew you would rise to the challenge.

    You now know that are so much stronger and wiser than you would have given yourself credit for!!

    And should you choose to have another child, the challenges will surely also be different. But you will still conquer them!! Don't base this decision on fear. Base it on LOVE, of which you have untold measure to give. (Besides, I'm sure Taylor would be an amazing Big Sister!)

    ReplyDelete